Doing some arm stretching with OT L. |
Just because he isn't doing 1:1 therapy does not mean he's just laying around although there's some rest time between therapies. He wears his faceplate at night, the gunslinger on both arms for about an hour each side, there's meals he needs to eat - some of it using his left arm, and wound care. We try to put lotion on him several times per day as well as his skin dries out quickly.
One of the new activities he did today was lay with his head off the bed. Then a PT stretched his neck while supporting his head. While that was going on I smoothed his neck, throat and cheeks. He seemed to really enjoy this position.
The scar bands are forming on his arms, body and around his mouth. For his mouth the bands are pulling down on his lower lip and that will make it harder for him to close his mouth. To counteract that we use the MPA, the mouth splints and then massage the skin and "pull" gently again the tug of the scar bands. Over time these actions will break the hold that the scar bands have on his skin and allow him to have more normal function.
Bombs away! Today Daniel had his own ordinance to unload. The use of pain meds (opiates) can take their toll on the regularity of said payload deliveries. We've added fiber and other small munitions to his diet through this period. After some additional prepping the cargo was unleashed successfully. The depiction below roughly matches today's bomb as it had been several days since our last mission. No civilians were harmed during the delivery.
Don't try this at home! |
Mason, your ability to convey all that you and your family are going through in a somewhat humorous method is amazing. However, I am certain that what the reality is for you all is unfathomable.... thank you for sharing this blog... sending prayers that Daniel's transition continues to go as well as possible and that his pain levels remain manageable... Kerry
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