In the morning we ate a big breakfast. Then we wore our face plate in bed. The ST came by and made a small adjustment to his face plate and it had less pinching on his collarbone.
We ate lunch and Daniel helped a lot. After that his PT worked with us in the gym. He did some big ball play, walked about forwards and backwards on a parallel bar ramp and then we searched the room for candy that he would hand us and then we'd challenge him to raise up his hand to grab it from us and only then we'd pop it in his mouth.
This afternoon Daniel spent 2 hours straight in his gunslinger. He just sat quietly. The less we did or interacted with him the better. Beforehand our PTs noticed that a few spots on his legs had been scratched off (probably caused by his itchiness) so our nurse covered them with mepilex then put on some tube net that fits really tight against his skin to hold everything in place. This material is supposed to help with the itching as well so we hope Daniel enjoys wearing it. You can see his legs are wrapped in it in this picture. It also makes it harder for him to scratch his skin so there won't be more damage.
It's seems like the itching is under control today and the medications are helping. Dan's skin dries out so quickly. Getting lotion on the exposed areas is a good thing to do, but staying on it keeps us busy.
Update: Daniel's surgery has now been set for Thursday - the 2nd queued up for the day. For the small patch on his lower left back they will probably harvest from his upper back since he will already be on his tummy for the procedure. His legs have healed and could also be used if need be except for the small spots he scratched today and yesterday.
With all his verbal complaining (which can get annoying) he's been complying and cooperating with all that we've asked of him today. You just have to ignore the whining, put it out of your mind and keep doing what you're doing.
No comments:
Post a Comment
Note: Only a member of this blog may post a comment.